Hi friends, I hope you all have been properly and that you are kicking off summer months in the greatest way feasible!
So numerous of you have achieved out to request how Dominic is doing and although I share a rapid photo on Instagram tales occasionally, I required to pop in speedily to give you an update.
Since I previous wrote, Dominic has completed cycles two and a few of chemotherapy. Equally built him ill one day of the treatment method but with a tweak of the nausea meds, he was experience much better.
His new beloved in-healthcare facility action? Audio therapy! He receives this sort of a big kick out of taking part in the devices 😁
He is also Quite into day by day bingo 😍
On the previous working day of his next cycle, he had the chance to tour the helicopter pad on the clinic roof, which he Beloved. The check out was wonderful and we realized a lot of entertaining specifics (mother loves a great industry trip, ha)!
When household, he proceeds to enjoy and pretty considerably enjoys existence as common, such as heaps of outside time now that it is nice out!
Between rounds two and three of chemotherapy, we traveled to New York for Dominic to be found at Memorial Sloan Kettering, the place they have a workforce of pediatric oncologists who specialize in neuroblastoma.
He is becoming addressed under their advice, so considerably acquiring all of his chemotherapy right here in Pittsburgh, but we will journey there for his tumor elimination surgery.
We both experienced our initial Uber experience, had Shake Shack for the initially time (SO Fantastic), and Dominic had his first remain in a lodge. A profitable journey, but there is definitely no put like dwelling!
Our New Usual
We are receiving very utilised to the indicators of very low hemoglobin (two times in a row of taking a lot more drink breaks than normal while playing outside? We guessed he was going to will need blood when he went to his clinic appointment the future day and, sure plenty of, he did) and reduced platelets (a lot more bruising). He has had a number of transfusions of both of those considering that commencing this journey, so a terrific major thank you to anyone who has at any time donated blood, as we are now so considerably more acutely aware of the relevance of this selfless act.
Hemoglobin, platelets, white mobile counts, neutrophils, and ANC numbers are now just prevalent dialogue below.
We’ve all kind of settled into our new regimen of solutions, visits to the healthcare facility, handling prescription drugs, line flushing, and so on.
The biggest hurdle considering that this last cycle of chemotherapy is that we have experienced to give Dominic day by day shots (vs the one-time pictures after the initial and next rounds) and it is the complete worst. He has constantly hated shots and he just dreads them, I get nervous, and it’s just a entire SCENE. The each day pictures have been used since of his upcoming stem cell harvest, to ensure his counts have been robust (see below).
Up coming Steps
This coming 7 days, Dominic will have a stem cell harvest, in which they will insert a short-term line to extract stem cells (which will then be saved) should he need to have them in any ability through therapy down the street. It is our hope that he would not, but they will be there if he does.
The following huge stage is in two weeks when he will have his tumor elimination surgery. Next the surgical procedures, he will have a different spherical of chemotherapy and then a several weeks just after that, a battery of assessments and scans to see where we stand with the ailment.
Remember to go on to pray that the cancer is responding to procedure, that the surgeons are equipped to take out the tumor safely and efficiently, and that he has a comparatively uncomplicated restoration.
Enjoyment at Home…
A several more pictures of the young ones from modern months ❤️
Wishing you all a fun and risk-free begin to your summer! ☀️❤️